Ir à luta! vivências dos pais nos cuidados do filho com deficiência.

Abstract

The objective was to understand the experience of parents in caring for children with disabilities. The Grounded Theory was adopted as a methodological framework, 9 parents of children and adults with intellectual or multiple disabilities were interviewed,between August/2015 and June/2016. The categories were obtained: Pre, peri, post-natal aspects, Posture assumed by the professional, Go to Fight! and Another world. It is, therefore, a parenting that is configured as these parents enter the Another world,which leads them to adjust their practices and beliefs about their child, about themselves and the universe of disability, sometimes under a perception of disability as a social disadvantage and incapacity, having as an intervening factor the Posture assumed by the professional, thus knowing these experiences from the GT allows: the improvement of care practices for these parents and their children, the planning of actions psychoeducational from a social perspective of disability in order to empower them and guide them about aspects of their children's development, enabling a look beyond the diagnosis and a more positive family adaptation.